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The Life Raft Group - Ensuring that no one has to face GIST alone The Life Raft Group - Ensuring that no one has to face GIST alone
Hi, my name is Rachel. I'm 20 years old and from the U.K.
Hi, my name is Rachel. I'm 20 years old and from the U.K.
The Life Raft Group - Ensuring that no one has to face GIST alone
About GIST
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Tissue Banks

TISSUE ACQUISITION AND SHIPMENT FOR ADULT AND PEDIATRIC GASTROINTESTINAL STROMAL TUMOR BANK

Who is Eligible: Adult and pediatric patients who were diagnosed with gastrointestinal stromal tumor (GIST).

Who will Coordinate the Tissue Shipment: Usually the Pathology Department where the tumor resection was performed. In some cases patients might write a request for the Pathology or Clinical Department for their tissue to be released.

Material Needed for Shipment:

    • Frozen Tumor Tissue saved at the time of surgical resection and stored -80°C before shipping. The tissue will be collected in the shipment Kit provided or in any plastic container (nunc, cryomold in OCT, etc.). It is preferable that the frozen tumor tissue be accompanied by a piece of matched normal tissue (gastric or intestinal wall, fat, skeletal muscle, etc). The tissue will be shipped in dry ice.
    • Paraffin Tissue Block: to be selected by the outside Pathologist from a representative viable tumor slide and which has been previously confirmed to be CD117 (c-KIT) positive. If there are multiple nodules removed (such as primary and metastases, or multiple resistant nodules) it is advised to send one paraffin block from each.
    • Pathology Report: For maintaining patient confidentiality the copy of the Path report to be included with the shipment of the tissue, should have wiped out the patient identifiers, such as name, DOB, and SS. A copy of the Path report with patient identification should be faxed at the same time to Life Raft Group at (973) 837-9095 for maintaining a record and possibly identification at a later time.

    Address for Shipment:

    Adult GIST Bank
    (patients older than 18 years old)

    Pediatric GIST Bank
    (patients that were diagnosed <18yrs)

    Matt van de Rijn, MD, PhD
    Professor, Dept of Pathology
    Rm L235, mailcode 5324
    Stanford U Med Center
    300 Pasteur Drive
    Stanford, CA 94305-5324
    Tel: 650-498-7154
    Fax: 650-725-6902
    Email: mrijn@stanford.edu

    Cristina Antonescu, MD        
    Department of Pathology
    Memorial Sloan-Kettering Cancer Ctr
    1275 York Ave
    New York, NY 10021
    Tel (212) 639-5905
    Fax: (212) 717-3203
    Email: antonesc@mskcc.org

     

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